Wheelchairs and Hallways: We refer to it as "Pain and Tourture"

As a parent there are always the little inconveniences that like to get to us......Such as making sure homeworks done, diapers are clean, all food is eaten...etc etc. In my case was having to go up to Tucson 2 days in a row for appts. It may sound like im complaining about something so little....but when your counting in a 40 min drive both ways and a time constraint of medication, lunch, and Steven having to go to work it gets a little crazy. Yesterday we had to go see Dr. Talwar


Dr. Talwar

Dr. Talwar has been seeing Rylan all his life. He is one of the BEST neurologists ever! Rylan's check up went great and Rylan's making progress great! My big thanks to Dr. Talwar (and I should knock on wood) is Rylan has been seizure free for almost 2 yrs!

Today was a fun day though. When we got to the childrens clinic this morning the first thing we had to do is get Rylan's blood drawn. That was a task. Because Rylan is sooo contracted on top he has to have blood drawn from his feet. After it took some time to find a good vein everything was going well till Rylan ripped the needle out....so they moved to the other foot. So after 15 mins Rylan walks out with 3 holes in his feet....and unfortunately has to endure Physical Therapy.

Rylan has a PT appt. every other week. Which is one of the necessities that can be a pain sometimes........but its worth it.


not a flattering photo but he was wore out from the blood work

Rylan's PT is Danyle she has been Rylans Physical therapist for most of his life.......So she took us back to the room where we were gonna try something new today. She Started Rylan out with stretching

Danyle and Rylan stretching


Yeah....it sucks to be Rylan lol

So the new thing Danyle wanted to try was the treadmill....Rylan was buckled in a harness and Danyle walked his legs to not only stretch but build the sensation his muscles miss from not walking.


ready to go


he having a blast! cant you tell????

Use those LEGS!!!!

After we did about 5 mins of the treadmill Rylan got to ride the tricyle! this is the coolest thing ever......and something about it makes him push the pedals on his own and he loves it!