Well on Wednesday morning we headed to TMC for Rylans most serious procedure yet. We got there and they took us straight back to the tiny little rooms you wait in till they take you away. Steven went ahead and got Rylan in his gown while I talked to the nurse and handled the paper work.
Well low and behold we weren't let down.....the nurse said there was an issue with his number for this procedure and couldn't continue till it was fixed.......so here we wait another 20 min for them to "make phone calls" to get it fixed. Once that was finally adjusted the anesthesiology came in and talked to us....meanwhile Rylan is doing really good for not having anything to eat or drink. Well he came in and went over everything and then tells us he ordered a breathing treatment as a precaution For rylan. ok.....
Rylan gets his breather and is PISSED. in comes Dr. O'Conner who gives us our info and lets us know how the surgery will be planned out and how long.......Then we say goodbye to Rylan and go wait....
Steven, my mom and I all find seats in the empty waiting room and sit. We crack jokes.....play a cheap game of trivial pursuit...and wait........as 2 hours creeps up I start getting really ansy........and when I start to get REALLY nervous.....out walks Dr. O'Connor.
Well she tells us how good the surgery went...and gave all the details we needed. One of the things we learned was Rylan WAS indeed refluxing which he NEVER showed any signs but his esophagus was short and showed some damage. And now we wait to get taken back to recovery. After an hour I cant take it anymore and go ask about him....they decide to let us go back.
Of course Rylan is still waking up but the recovery nurse was nice enough to let me get beside him....and ask if we wanna see his belly. Of course we did!
|Rylans new scars|
When Rylan started acting better we needed to focus on his breathing...his O2 stats were all over the place dipping way lower then we would like. So we got permission to walk around the hospital.....they said the more we got him up and moving around the quicker his lungs would open and move air....
Our nurse at the hospital gave us a TON of supplies....when we got home we went ahead and put everything away...then it was time to feed Rylan again....well when you feed a child a bolus feeding you use what is basically a HUGE syringe
All in all after this surgery we have noticed so many changes in Rylan...not only does his stomach no longer bulge out.....but he has been VERY happy! We LOVE it! The only problem is now im forgetting to do things because I based everything around his previous eating schedule!