I know many special needs moms have been in this boat at one point. It sucks.
I get frustrated from time to time cause I cant just load up and go somewhere. So many factors determine whether or not we can go out as a family. Every thing from the weather, to how crowded where we are going is. It can be a little depressing.
Here is why I feel Isolated:
Well we decided to let Rylan go back to school part time.
That didnt last long.He went to school again and That night I noticed Rylan was stating all over the place. I wasn't to fond of this. So I kept an eye on him, around 9 or 10 o'clock I went into his room to check on him. His stats were low.
I call Steven and He comes home to take Rylan to the hospital. I took my anxiety meds and I was in no condition to drive. So off my boys went.
Around 5 am they returned home. Rylan was on 2 liters of oxygen and running a fever. Neither Boy had slept so Steven went to bed and I took care of Rylan with my main focus breaking the fever.
That evening Rylan broke his fever and we worked on getting him off the oxygen. After 3 days he was able to come off completely.
But then that led Steven and I to face the fact that we were going to have to do the inevitable. Rylan was not going to return to school. He is being placed in the Home Bound program.
Now as a stay at home mom you are home all the time regardless. But with your child in school you have that 5 or 6 hours of freedom that you can do what you want. Run to the store, get your hair done, etc.
With Rylan no longer in school, this was gonna be a rare treat for me. I know this and Its what is best for my son.
I have managed to be diagnosed with Anxiety Disorder. After all the ups and downs with Rylan it has begun to take its toll on my body. I know some people look at anxiety as a bullcrap disorder.....but let me put it this way. There has been days where have I cleaned my entire 3 bedroom/ 2 bathroom house, with a front room and living room, washed all sheets and made beds, towels and laundry in one day. Because I cant sit still. Not only that I have begun to have health issues.
Its not a bad thing but when you have this disorder and you main focus is your special needs child and nothing else.....it makes things worse.
I have begun falling in a dark hole, where I feel like I have my son in a bubble. I am isolating myself in my house because Im to worried about the germs everywhere else.
I could use a good massage.....
I get frustrated from time to time cause I cant just load up and go somewhere. So many factors determine whether or not we can go out as a family. Every thing from the weather, to how crowded where we are going is. It can be a little depressing.
Here is why I feel Isolated:
Well we decided to let Rylan go back to school part time.
That didnt last long.He went to school again and That night I noticed Rylan was stating all over the place. I wasn't to fond of this. So I kept an eye on him, around 9 or 10 o'clock I went into his room to check on him. His stats were low.
I call Steven and He comes home to take Rylan to the hospital. I took my anxiety meds and I was in no condition to drive. So off my boys went.
Around 5 am they returned home. Rylan was on 2 liters of oxygen and running a fever. Neither Boy had slept so Steven went to bed and I took care of Rylan with my main focus breaking the fever.
That evening Rylan broke his fever and we worked on getting him off the oxygen. After 3 days he was able to come off completely.
But then that led Steven and I to face the fact that we were going to have to do the inevitable. Rylan was not going to return to school. He is being placed in the Home Bound program.
Now as a stay at home mom you are home all the time regardless. But with your child in school you have that 5 or 6 hours of freedom that you can do what you want. Run to the store, get your hair done, etc.
With Rylan no longer in school, this was gonna be a rare treat for me. I know this and Its what is best for my son.
I have managed to be diagnosed with Anxiety Disorder. After all the ups and downs with Rylan it has begun to take its toll on my body. I know some people look at anxiety as a bullcrap disorder.....but let me put it this way. There has been days where have I cleaned my entire 3 bedroom/ 2 bathroom house, with a front room and living room, washed all sheets and made beds, towels and laundry in one day. Because I cant sit still. Not only that I have begun to have health issues.
Its not a bad thing but when you have this disorder and you main focus is your special needs child and nothing else.....it makes things worse.
I have begun falling in a dark hole, where I feel like I have my son in a bubble. I am isolating myself in my house because Im to worried about the germs everywhere else.
I could use a good massage.....
Oh, Jenny! Get out! You have to get out for a little while and take care of yourself! I know, deep down, you know this. But you can't take care of Rylan if you aren't able to find some happiness and take care of yourself. Thinking of you!!!
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